Thanks for all the comments!

I haven’t posted here in quite a while, since I’ve been busy with a bunch of life changes (bought a new home and changed jobs, which have both kept me quite busy). First off though, I wanted to thank everyone that has left a comment here over the past little while — I think it’s great to see that we’re not alone in feeling this way.

Unfortunately, there hasn’t really been much progress for me in the past half a year however. I’ve been feeling pretty much the same (except for a few months after my doctor had prescribed a migraine medication which I had a bad reaction to — which was pretty much hell).

Yet another visit to my neurotologist suggested that something called ‘overbreathing syndrome’ might be worsening my already-existing balance issues, and although I’m not entirely sure about that. It seems to me sometimes like the doctors are grasping at straws to explain away how I feel.

I’ve got another appointment this Wedsnesday, but to be honest I dont’ really have much hope that there’s going to be much they can do at this point. It’s been 4 years already, and I despite managing my dizziness a bit better, I don’t think I’ve really actually felt any better.

I’m hoping that things will improve as time goes by, but it’s often difficult to keep up hope after such a long time dealing with this. Just wanted to provide everyone an update on where things are with me — and remember, you’re not alone in how you feel with your balance problems.

2 Comments, Comment or Ping

  1. HillaryS

    I have been battling this for over 20 years. I was in “remission” twice, once for eight years. I’m getting tested again and going back on meclizine. Any updates on your end?

  2. kiz

    Sorry to hear this. I was really hoping by the time I got to read this post you would be saying (finally) how great you feel. I really feel for you. Please don’t give up (or give up on this blog either). I’m in 11th week of vestibular neuritis (a newbie I guess to many others) and uncannily, my prescribed VRT is identical to yours. I’ve been going to a London hearing and balance centre. I guess I should have some tests. I don’t understand how your tests seem negative when ones before showed up with damage… I must be missing something… sorry. Did you give up on the VRT? Did it really not help you? On a positive note, at least you have been leading a (relatively) full life, moving, etc. What symptoms do you still have? Fatigue, dizziness, headaches neck pain, anxiety, etc?
    Your blog is really helpful. thanks so much.


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