The invisible suffering of balance disorders.

Dizzy Dame has a great post about the difficulty of dealing with a condition that is essentially invisible to others. I completely agree that this condition is a really tough thing to explain to someone, especially when I function and act normally all the time.

I think it starts to make other people wonder if you’re really just making it up or think it’s all just in your head. For some people however, there are other very unfortunate side effects of a vestibular illness. Take my sister for example.

Like me, my sister was diagnosed with something that either vestibular neuritis or labyrinthitis, and she suffered from the same horrible vertigo that I did. Unfortunately though, she went completely deaf in that ear within a few days of being sick. Yep, that’s right — totally deaf in one ear. So while she’s totally lost her hearing, it would be pretty difficult for anyone to say she’s not really deaf.

Unfortunately, there are many people who have problems with their ears and end up experiencing vertigo. And believe me, I feel terrible for anyone who has to go through the horrible experience of vertigo — there’s nothing else quite like it (and not in a good way).

As I said last time, it’s hard for someone who has never experienced problems with their balance to understand how difficult it can be to deal with. We end up suffering a great deal, but no one really seems to understand how much we actually do put up with.

On a (somewhat) related note, I’m taking a break from the meclizine for the first time in about 5 days, just to see how I do. It’s been about 4 hours since the last one wore off, and I seem to feel not too bad right now. Going to bed will be the real test however.

2 Comments, Comment or Ping

  1. extraordinarymachine

    Thanks for sharing your experience with dizziness and vertigo. I have a loved one who is dealing with very similar circumstances and I have to admit that I don’t always understand where he’s coming from. Sometimes it can get somewhat frustrating. But I always remind myself that he’s not choosing to do any of this and I just try to be as supportive as I can.

    Thanks for helping me understand.

  2. I’m glad I could help (of course, I’d be happier if no one ever had to experience this). I think it’s certainly a tough thing to understand, but I think it’s also normal for you to feel frustrated. It’s upsetting to see a loved one go through something that is both invisible to you and that you can’t do anything about. I’m sure it’s tough to understand where he’s coming from.

    Before I ever had any balance issues, my sister went through the same thing — and I remember thinking, why can’t she just snap out of it? It can’t be that bad.

    Was I ever wrong. I wish your loved one and yourself all the best, and I hope he has a speedy recovery. Thanks for you comment.

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