Comments on: Travelling with disequilibrium/vertigo/dizziness? http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/ My experiences with vertigo, disequilibrium, balance, dizziness and anxiety. Sun, 05 Feb 2012 03:56:00 +0000 hourly 1 http://wordpress.org/?v= By: Joanne http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/comment-page-1/#comment-11443 Joanne Mon, 30 May 2011 17:48:18 +0000 http://vertigoguy.com/?p=11#comment-11443 Rosie, like you I have had a few attacks of Vertigo...and I have Mal de Debarquement Syndrome. Being in a moving car I was ok...stop the dam car and look out...I was still moving . Oh joy.. lol..This has happen to me 4 or 5 times now...each attack lasted up to three months to get myself settled down. I looked up on to get some self help as there doesnt seem to be much that the ENT Drs can do for balance issues... I found some to do and inspite of how I was feeling each day doing them was helpful ...In the mean time I used my mother's cane to navigate myself... If cleanin up kitchen dishes and putting them away.. I would hold on to the handles on the doors...I just kept moving...I also insisted on sitting and rocking ...not hard , but ever so slightly to try and help out the mind that was freaking out or wanted too...lol The only med that helped me...cant think of any really they tried me on Cerc.. took one and went to bed...thats when I was feeling the rocking ..oh joy..One thing that I also have is Panic and Anxiety issues..so what came first...balance or Panic? Doesnt matter..we just have to deal with things as they come...if I would suggest to you , is to keep moving...stay focused on trying to take the fear of not getting better out of this... rest is so important ...not to get over tired is a huge no no...eating a lot of salty foods, alcohol also can make things worse...as far as travel goes...I have travelled a lot...by car...and wont by plane or or ship...at least in the car.. I can stop if I have had enough...hope your feeling better soon...stay focused...dont dwell...positive out look helps...good luck Joanne Rosie, like you I have had a few attacks of Vertigo…and I have Mal de Debarquement Syndrome. Being in a moving car I was ok…stop the dam car and look out…I was still moving . Oh joy.. lol..This has happen to me 4 or 5 times now…each attack lasted up to three months to get myself settled down. I looked up on to get some self help as there doesnt seem to be much that the ENT Drs can do for balance issues… I found some to do and inspite of how I was feeling each day doing them was helpful …In the mean time I used my mother’s cane to navigate myself… If cleanin up kitchen dishes and putting them away.. I would hold on to the handles on the doors…I just kept moving…I also insisted on sitting and rocking …not hard , but ever so slightly to try and help out the mind that was freaking out or wanted too…lol
The only med that helped me…cant think of any really they tried me on Cerc.. took one and went to bed…thats when I was feeling the rocking ..oh joy..One thing that I also have is Panic and Anxiety issues..so what came first…balance or Panic? Doesnt matter..we just have to deal with things as they come…if I would suggest to you , is to keep moving…stay focused on trying to take the fear of not getting better out of this… rest is so important …not to get over tired is a huge no no…eating a lot of salty foods, alcohol also can make things worse…as far as travel goes…I have travelled a lot…by car…and wont by plane or or ship…at least in the car.. I can stop if I have had enough…hope your feeling better soon…stay focused…dont dwell…positive out look helps…good luck
Joanne

]]> By: Rosie http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/comment-page-1/#comment-11047 Rosie Sun, 22 May 2011 20:58:42 +0000 http://vertigoguy.com/?p=11#comment-11047 I'm very happy I found this blog. I had my very first episode of vertigo, a very bad episode, a week go and have felt very sick ever since. At first it was horrible, non stop vomiting and the most horrible dizziness ever that lasted three days, vomited every time a took one of the nine pills that the doctor prescribed. After three days I felt morning sickness (the one pregnant women get) and still dizzy . Today is the 8th day, nausea is gone but still dizzy. Have plans of going to the Caribbean in three weeks and I'm very afraid of what the four hours flight can lead to. I really feel that this is an one time thing, but could be a hopefully wish. Has anyone travel by plane so soon after an episode??? Any recommendations??? Anything will be appreciated. I’m very happy I found this blog. I had my very first episode of vertigo, a very bad episode, a week go and have felt very sick ever since. At first it was horrible, non stop vomiting and the most horrible dizziness ever that lasted three days, vomited every time a took one of the nine pills that the doctor prescribed. After three days I felt morning sickness (the one pregnant women get) and still dizzy . Today is the 8th day, nausea is gone but still dizzy. Have plans of going to the Caribbean in three weeks and I’m very afraid of what the four hours flight can lead to. I really feel that this is an one time thing, but could be a hopefully wish. Has anyone travel by plane so soon after an episode??? Any recommendations??? Anything will be appreciated.

]]> By: Lynne http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/comment-page-1/#comment-8307 Lynne Fri, 25 Feb 2011 22:51:33 +0000 http://vertigoguy.com/?p=11#comment-8307 Hank...as with you, whoever I ask whether they feel strange in front of elevators, they all say No. And you are right in that there probably IS an energy field surrounding a moving elevator. Only problem is, I brought my little EMF detector to work one day and measured the field in front of the elevator while I waited for it (and while I felt dizzy). Nothing. The meter said zero. I was surprised. Even a big zero inside the elevator. Does anyone else here have a general sensitivity to noise as well? I do. Hank…as with you, whoever I ask whether they feel strange in front of elevators, they all say No. And you are right in that there probably IS an energy field surrounding a moving elevator. Only problem is, I brought my little EMF detector to work one day and measured the field in front of the elevator while I waited for it (and while I felt dizzy). Nothing. The meter said zero. I was surprised. Even a big zero inside the elevator.
Does anyone else here have a general sensitivity to noise as well? I do.

]]> By: hank bargine http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/comment-page-1/#comment-7963 hank bargine Fri, 18 Feb 2011 01:16:22 +0000 http://vertigoguy.com/?p=11#comment-7963 I found this blog after googling that I too feel a disequilibrium standing out front of elevators waiting for them to arrive. I have no problem once I enter the elevators, but the feeling is the same in front of every elevator I stand in front of -- sort of like an energy field that makes me feel off center. I wondered if this feeling is the same for others and what causes it to happen. Always with my travel mates I ask them if they feel it, always the answer is no. What is that makes it different for me? I found this blog after googling that I too feel a disequilibrium standing out front of elevators waiting for them to arrive. I have no problem once I enter the elevators, but the feeling is the same in front of every elevator I stand in front of — sort of like an energy field that makes me feel off center. I wondered if this feeling is the same for others and what causes it to happen. Always with my travel mates I ask them if they feel it, always the answer is no. What is that makes it different for me?

]]> By: Kerry http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/comment-page-1/#comment-5847 Kerry Wed, 24 Nov 2010 22:28:44 +0000 http://vertigoguy.com/?p=11#comment-5847 Hi there guys I've been reading all posts and well I'm amazed I've recently been suffering from similar things I kind of thought I was weird and the only one and as if no one believes what I'm telling them I'll explain . I do alot of driving with my job a few years ago I woke up feeling fine I set off on my travels when suddenly I felt shocking my eyes felt like they were turning towards my nose I felt sick and as tho I was travelling at the same speed but my car was slowing if that makes sence lol I was so scared my feet was tingling my body went numb . Docter put this down to a viral infection I've never felt right since I now get this often I cAn just turny head slightly and I don't focus right I do actually work with opticians so do have regular checks my eyes are fine when walking I do feel off balance alot docs have given me anti depressants these symptoms ate still occurring also every now then I get a noise like a bird flapping it's wings so hard it feels and sounds weird but doc just fobs me off hope. All goes well with everyone x Hi there guys I’ve been reading all posts and well I’m amazed I’ve recently been suffering from similar things I kind of thought I was weird and the only one and as if no one believes what I’m telling them I’ll explain . I do alot of driving with my job a few years ago I woke up feeling fine I set off on my travels when suddenly I felt shocking my eyes felt like they were turning towards my nose I felt sick and as tho I was travelling at the same speed but my car was slowing if that makes sence lol I was so scared my feet was tingling my body went numb . Docter put this down to a viral infection I’ve never felt right since I now get this often I cAn just turny head slightly and I don’t focus right I do actually work with opticians so do have regular checks my eyes are fine when walking I do feel off balance alot docs have given me anti depressants these symptoms ate still occurring also every now then I get a noise like a bird flapping it’s wings so hard it feels and sounds weird but doc just fobs me off hope. All goes well with everyone x

]]> By: Lynne http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/comment-page-1/#comment-5426 Lynne Fri, 05 Nov 2010 17:00:22 +0000 http://vertigoguy.com/?p=11#comment-5426 To answer Patty's post from 6/9/09: YES, I always get very dizzy while waiting outside an elevator. I only feel it while the elevator is moving. Once actually on the elevator, I do not have any dizziness, whether it is moving or not. I wonder if it has to do with an electromagnetic field around the elevator shaft. To answer Patty’s post from 6/9/09: YES, I always get very dizzy while waiting outside an elevator. I only feel it while the elevator is moving. Once actually on the elevator, I do not have any dizziness, whether it is moving or not. I wonder if it has to do with an electromagnetic field around the elevator shaft.

]]> By: Mac http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/comment-page-1/#comment-4088 Mac Tue, 06 Jul 2010 15:03:51 +0000 http://vertigoguy.com/?p=11#comment-4088 Have had EXACTLY the same. Very odd sensation. I think it's to do with anxiety and discomfort - that is, becoming hypersensitive to movement. I had the same climbing a very high old tower in a very enclosed stairwell. Have had EXACTLY the same. Very odd sensation. I think it’s to do with anxiety and discomfort – that is, becoming hypersensitive to movement. I had the same climbing a very high old tower in a very enclosed stairwell.

]]> By: Jason http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/comment-page-1/#comment-3543 Jason Mon, 29 Mar 2010 23:22:59 +0000 http://vertigoguy.com/?p=11#comment-3543 I was first diagnosed with Meniere's in 2008 after two initial episodes of vertigo exactly one week apart. Then after those attacks, nothing but tininitus in my right ear. Then in January 2010, vertigo again, the ENT put me on diuretics. Thats when they found out I didn't have it. It dehydrated me and didn't help with any of the symptoms. With an MRI of inner ear and brain, CT, ECOG, blood tests they determined it was an autoimmune ear disease. They put me on Prednisone, the hearing came back, no vertigo. the minute I tapered off, all the symptoms came back. Now they are putting me on a very low dose of Methotrexiate to suppress my overractive immune system. basically my immune system is attacking my ear nerve. So I emphathize with all of you on here. Best of luck to you all. Vertigo sucks, plain and simple I was first diagnosed with Meniere’s in 2008 after two initial episodes of vertigo exactly one week apart. Then after those attacks, nothing but tininitus in my right ear. Then in January 2010, vertigo again, the ENT put me on diuretics. Thats when they found out I didn’t have it. It dehydrated me and didn’t help with any of the symptoms. With an MRI of inner ear and brain, CT, ECOG, blood tests they determined it was an autoimmune ear disease. They put me on Prednisone, the hearing came back, no vertigo. the minute I tapered off, all the symptoms came back. Now they are putting me on a very low dose of Methotrexiate to suppress my overractive immune system. basically my immune system is attacking my ear nerve. So I emphathize with all of you on here. Best of luck to you all. Vertigo sucks, plain and simple

]]> By: DENIS http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/comment-page-1/#comment-3291 DENIS Mon, 11 Jan 2010 01:29:26 +0000 http://vertigoguy.com/?p=11#comment-3291 i am going to work in the state soon is novo betahistine sold there. if not is there some similar drugs to replace those. I been diagnose with meniere syndrome and believe me no piece of cake. It disable me to a point that i end up in the hospital. Evy convulsion, eyes movement,can not get up,can not keep any thing in both ways,i think the body react like if it was poison,trying to protect it self, the ears and eyes sends a wrong message to the brain making every thing shut down into bodily shock.I got eco, cat scan,and about every test possible and guest what, nothing wrong, Until one day they send me to have visual test and inner ears test,so they hook me up with all kinds of plug in the scalp and started the test with all kind of light left right up and down every thing seem alright. Finally the doctor took an icy water syringe apply the water inside the right ears and induce me the worst attack i ever had so to him it was the normal response of an healthy ears, than he did the same on the left ears and nothing happen this was the confirmation of my meniere syndrome, the ears was not responding to the icy water witch mean the ears was sick,he was able to see it because of the oscillation of both eyes trying to recenter my body position into a false position. So now i'm under treatment for life with novo betahistine witch work for me very good plus two tube in the ears to relieve the pressure. Been 7 years in this situation, 4 not able to do anything but work and hoping not to get sick and when i got sick each crisis lasted from 1 to 2 weeks having people cooking and cleaning for me,an slowly coming around from the fog and problem to even think properly. Now it has been 3 years that I'm in control with drugs but i still have the crisis witch do not affect me has much,since it is my eyes that are affected in a moment of crisis, i know when i try to read that I'm in crisis and once in a while i get the door frame due to bad balance, so i learn how to compensate the vertigo by looking at something about 20 feet away (focusing) for few seconds. And life goes on.I'm one of the lucky in my bad luck because usually people will get deaf in the affected ear and up to now no lost of hearing. Well i hope i did not scare anybody but it is the way it affected me so long before i could have someone do something about it that got me having anxiety, witch when in crisis still scare me,but i know that it gets better every time,with less and less anxiety. Love you guys and do not legs go, learn your symptom and talk to a ORL doctor. I forgot the noise in the affected ear, me it sounded like a truck at night so load it woke me up, on a good day it put me to sleep. But not to many of those. i am going to work in the state soon is novo betahistine sold there.
if not is there some similar drugs to replace those.

I been diagnose with meniere syndrome and believe me no piece of cake.
It disable me to a point that i end up in the hospital.
Evy convulsion, eyes movement,can not get up,can not keep any thing in both ways,i think the body react like if it was poison,trying to protect it self, the ears and eyes sends a wrong message to the brain making every thing shut down into bodily shock.I got eco, cat scan,and about every test possible and guest what, nothing wrong, Until one day they send me to have visual test and inner ears test,so they hook me up with all kinds of plug in the scalp and started the test with all kind of light left right up and down every thing seem alright.
Finally the doctor took an icy water syringe apply the water inside the right ears and induce me the worst attack i ever had so to him it was the normal response of an healthy ears, than he did the same on the left ears and nothing happen this was the confirmation of my meniere syndrome, the ears was not responding to the icy water witch mean the ears was sick,he was able to see it because of the oscillation of both eyes trying to recenter my body position into a false position. So now i’m under treatment for life with novo betahistine witch work for me very good plus two tube in the ears to relieve the pressure.
Been 7 years in this situation, 4 not able to do anything but work and hoping not to get sick and when i got sick each crisis lasted from 1 to 2 weeks having people cooking and cleaning for me,an slowly coming around from the fog and problem to even think properly.
Now it has been 3 years that I’m in control with drugs but i still have the crisis witch do not affect me has much,since it is my eyes that are affected in a moment of crisis, i know when i try to read that I’m in crisis and once in a while i get the door frame due to bad balance, so i learn how to compensate the vertigo by looking at something about 20 feet away (focusing) for few seconds. And life goes on.I’m one of the lucky in my bad luck because usually people will get deaf in the affected ear and up to now no lost of hearing.
Well i hope i did not scare anybody but it is the way it affected me so long before i could have someone do something about it that got me having anxiety, witch when in crisis still scare me,but i know that it gets better every time,with less and less anxiety.
Love you guys and do not legs go, learn your symptom and talk to a ORL doctor.
I forgot the noise in the affected ear, me it sounded like a truck at night so load it woke me up, on a good day it put me to sleep. But not to many of those.

]]> By: Angela http://vertigoguy.com/travelling-with-disequilibriumvertigodizziness/comment-page-1/#comment-2767 Angela Sat, 01 Aug 2009 18:36:38 +0000 http://vertigoguy.com/?p=11#comment-2767 Hi all, wow....so many stories...and yet similar symptoms. I have been attempting to do a lot of research because I am on my 18/19th day of dealing with a "imbalance" floating type symptom. I did first have these symptoms back in 2004 & 2005 when my husband and I fly to go on a cruise. I came back both times with symptoms of like being "on a boat"...however, after treating with my GP, first time was an inner ear infection...second time she though sinuses. I figured I could never go on a boat again. Well recently my husband and I travelled to Las Vegas, within a day 1/2 I was experiencing the "swaying" again...of course I didn't think about it..b/c I wasn't on a boat! Has anyone ever had this onset after flying? I've been on two antibiotics which haven't worked, they gave me an antivert...but I knew it wasn't vertigo, they have given me an anti-inflammatory (medrol pak) to see if it was the inner ear inflammed. No real relief yet. I had similar experience of huge sinus/head pressure like my head weighed a 100lbs. That has resolved somewhat. My GP has taken some blood work and I'm waiting for that. Like one of the other posters, I find that driving doesn't affect me as much, I happen to ride motorcycles but haven't since this b/c I don't feel safe doing so. If the blood work is ok, then an ENT referral and MRI are next...but it sounds like many of you had that with no success. I am just "working" through it when I can...I have to work, and do..but don't feel as productive..I started to my workouts again, because I just started getting so meloncholoy that I couldn't deal with it anymore...it's a challenge to work out...I definitely feel the symptoms exasterbate but think my mental health needs it. Alcohol or caffine seem to increase the "imbalance" feelings... I am surprised at how long some of you have dealt with this...makes me a little worried. :( but Im hoping for the best. I know I'm having my thyroid checked (I've suspected problems with this before)...I have read that a thyroid issue could bring about these type of symptoms...has anyone else dealt with this? Well I'm hoping for the best and will see whats next after blood work...Like everyone else..I just want to feel normal again! Hi all, wow….so many stories…and yet similar symptoms. I have been attempting to do a lot of research because I am on my 18/19th day of dealing with a “imbalance” floating type symptom. I did first have these symptoms back in 2004 & 2005 when my husband and I fly to go on a cruise. I came back both times with symptoms of like being “on a boat”…however, after treating with my GP, first time was an inner ear infection…second time she though sinuses. I figured I could never go on a boat again. Well recently my husband and I travelled to Las Vegas, within a day 1/2 I was experiencing the “swaying” again…of course I didn’t think about it..b/c I wasn’t on a boat!

Has anyone ever had this onset after flying? I’ve been on two antibiotics which haven’t worked, they gave me an antivert…but I knew it wasn’t vertigo, they have given me an anti-inflammatory (medrol pak) to see if it was the inner ear inflammed. No real relief yet. I had similar experience of huge sinus/head pressure like my head weighed a 100lbs. That has resolved somewhat. My GP has taken some blood work and I’m waiting for that.

Like one of the other posters, I find that driving doesn’t affect me as much, I happen to ride motorcycles but haven’t since this b/c I don’t feel safe doing so.

If the blood work is ok, then an ENT referral and MRI are next…but it sounds like many of you had that with no success.

I am just “working” through it when I can…I have to work, and do..but don’t feel as productive..I started to my workouts again, because I just started getting so meloncholoy that I couldn’t deal with it anymore…it’s a challenge to work out…I definitely feel the symptoms exasterbate but think my mental health needs it. Alcohol or caffine seem to increase the “imbalance” feelings…

I am surprised at how long some of you have dealt with this…makes me a little worried. :( but Im hoping for the best. I know I’m having my thyroid checked (I’ve suspected problems with this before)…I have read that a thyroid issue could bring about these type of symptoms…has anyone else dealt with this?

Well I’m hoping for the best and will see whats next after blood work…Like everyone else..I just want to feel normal again!

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